Saving the Lives of People with Blood Cancer
by
Sam was only three years old when he started to experience fatigue and bruising and was diagnosed with aplastic anaemia. He was treated with immunosuppressants, but 17 years later he was also diagnosed with myelodysplastic syndrome (MDS) and was told he’d need a stem cell transplant. After his transplant, Sam has experienced graft versus host…
by
Claire Mason is a senior physiotherapist at Northern Ireland Cancer Centre, working in haematology with a range of patients, including those who have received a stem cell transplant. Claire shares with us some specialist advice about managing physical health before and after transplant, as well as side effects such as fatigue, and how to take…
by
In 2017, Louisa was diagnosed with leukaemia at just 12 years old and needed a stem cell transplant to survive. Thankfully, she had a match, but the treatment and recovery took its toll on the whole family. Here, Karine, Louisa’s mum, tells us how much Family Camp made such a difference. Transplant and recovery were…
by
Drew was born with a condition called Diamond-Blackfan anaemia, which results in bone marrow failure. He had a bone marrow transplant in 2014 when he was four years old, and is now a bouncy, full-of-life nine-year-old! Here, his mum Helen tells us how freeing Family Camp was for their family. We found out about Family…
by
Lorna Welsh is an Anthony Nolan Clinical Nurse Specialist (CNS) working at The Queen Elizabeth University Hospital, Glasgow. Every Anthony Nolan CNS delivers specialised care to patients, providing information, guidance and support. Here Lorna talks to us about how she became a CNS, describes her typical day working with transplant patients in Glasgow and what she…
by
Scott was the 9th patient in the UK to participate in a CAR T-cell therapy trial, following a relapse from Acute lymphoblastic leukaemia (ALL). Scott shares with us how this treatment option became available, what led to this decision and how it was successful for his ‘dream outcome’ of remission. CAR T-cell therapy has been…
